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Not me! For too long no one heard me speak this four-letter word
I accepted help when it was offered. But time and again, I wasn’t sure I really needed it.
An inside look at Evelyn’s situation now: It’s a roller coaster
The hospice nurse told me to expect good days and bad days—like a roller coaster. It’s an apt comparison. And I remember: Sometimes roller coasters make me sick.
Another move. Another question of timing. Another search for balance.
Those who may be surprised or skeptical or confused about my decision haven’t said so, but if they had, I’d understand. It may seem to others—some days it seems to me—like I’m making this move too soon.
An easy question with no simple answer: Why am I doing this?
Does her appearance today really matter? I’m thinking about why I always answer “yes.”
Evelyn is in a fog. But I’m coming to realize she’s not the only one
Everyday, “normal” people all around me are limited by some fog I may not see and they may not understand.
Experiencing the hardest part of Alzheimer’s. She’s in a fog
A unique workshop helped me experience the world through the senses of an Alzheimer’s patient. And now I see that Evelyn has been in a fog.
Trauma: another word for the stress a caregiver experiences?
I’ve written much about loss and grief. A note from a friend leads me to one more possible label for my experience.
Obvious but unspoken: Evelyn is going to die. (But maybe not soon)
The starkness of the words in black type on a white screen prods us to want more information. Why are we—why am I—surprised by something so certain?
How and why caregivers order their days around another’s needs
If accommodation is healthy and normal, why does it feel like such a burden to the caregiver?
Since we are our memory, what does this mean for her—and for me?
“We ARE our memory,” a friend said to me. And this adds another layer of sadness—and resolve—as I watch my wife’s memory fade and falter.
June 22, 2025: It’s an important date, but I almost forgot why
52 years . . . and I almost forgot!
A voice from the past, a reflection that makes us sad—and proud
Sometimes memories from 20 years ago make us sad. Sometimes they do something more. That’s what happened for us this week.
Confirming today the truth of two conclusions reached long ago
These are not new thoughts to me. But now I find they’re guiding me in ways I wouldn’t have imagined.
Just two words, but they capture the essence of our days with Evelyn
We’re glad she seems generally healthy. But sometimes we grow weary with figuring out the diseases daily damaging her brain.
It’s a question for every caregiver, but the answer isn’t easy
How is this moment preparing me for the opportunities to come? What will they be, and will I be ready? While dealing with today, I do well to think about tomorrow.
Questions after a week with Covid: one disease, two experiences
I can tell you exactly what it meant for me to have Covid. Evelyn suffered, too, but we could only guess at how she felt.
‘Thanks to dementia’ their stories encourage me to tell my own
“Writing is an act of ego.” I’ll agree. But as readers write in response to these posts, I see how writing can be about so much more than the writer.
Facing up to ‘never’ with a task I would not have anticipated
Finally! I have quit talking about a task I was dreading. I’m struck by how I never anticipated I would do this.
Sunday was my birthday number 75 (gulp!). I can hardly even admit it
Rather than deny my advance (or is it slide?) toward 80, I’ve decided to pause and take stock of what I’m learning about life from this crossroads.
‘You’re handling this pretty well,’ he said. I think he’s right
The support group leader doesn’t seem too concerned about me. I’m not, either!